Wednesday, July 11, 2012
July Transplant Update
Wednesday, May 30, 2012
End of May Transplant Update
Wednesday, May 2, 2012
May Transplant Evaluation Update
Sunday, April 8, 2012
April Transplant Evaluation Update
Sunday, February 19, 2012
Peritoneal Dialysis Update
Sunday, February 5, 2012
February Transplant Evaluation Update
Saturday, February 4, 2012
Article by David Haas
20 Minutes a Day Leads to a Healthier Life
Many instances in life create stress. Stress causes the immune system to weaken, making you more susceptible to illness such as the cold or flu, among others. Stress is inevitable; everyone has it or experiences it at some point in time whether it is caused by planning your wedding, decorating your new home or figuring out whether or not to go back to work after your baby is born. Unfortunately, some individuals have stress that far exceeds how many people to invite to the reception. From chemotherapy for breast cancer to rare and painful mesothelioma treatment, people undergoing treatment for cancer often struggle with stress and emotional issues.
One thing that everyone with stress has in common is the fact that exercise helps to alleviate stress and in turn strengthens the immune system. For a cancer patient undergoing treatment, few things are as important as a strong immune system. In addition to strengthening the immune system, exercise is beneficial to cancer survivors because it improves their quality of life, which is a catalyst to successful cancer treatment.
The National Cancer Institute advocates physical fitness for cancer patients and survivors because of its ability to improve quality of life. Weight control is one thing, but the benefit a healthy lifestyle – that includes both a healthy diet and physical activity – lessens a person’s risk of developing chronic conditions such as heart disease, diabetes and high blood pressure, all of which make overcoming cancer more difficult .
Additionally – and perhaps most importantly – physical activity promotes well-being, which is something that many people have a difficult time achieving when facing cancer treatments. The benefits of maintaining a healthy, active lifestyle make it easier for patients to deal with treatment for their cancer. In addition, once a person beats cancer he or she will be much healthier, much happier and able to more fully enjoy life.
The benefits of physical fitness are numerous; however, many people are too tired or too weak to work out regularly, which is why it is important to know that even minor physical activity is better than none. For example, a short walk around the neighborhood is something that takes little time and little effort. Walking to the mailbox is physical activity. Playing a game of catch in the front yard with the kids is physical activity. The key is to get up and move, even when you don’t feel like it.
Physical fitness has both physical benefits and emotional benefits. Whatever your reasons for wanting to exercise; it doesn’t matter. What’s important is becoming active and making your life a healthier one. A 20-minute walk every day is enough to keep you healthier and happier for the rest of your life.
Tuesday, January 17, 2012
Transplant Evaluation Update
Last we finally got to meet the transplant coordinator (at Oregon Heath & Science University - OHSU) in person and we both feel reassured that the official evaluation process is occurring. Here's where we are now. Each time we come in we are seen by one of the three lead docs on the heart transplant team. This time we saw Dr. Mudd. He's the "cup is half empty doc" but of the three we feel that he is doing the best to manage our expectations carefully. Overall, I am much stronger now due to cardiac rehab and my mental health is greatly improved also. While my heart and kidneys will not recover, I am doing better and getting stronger. Dr. Mudd is considering switching out my pacemaker for a biventricular defibrillator to help better regulate my heartbeat and make my heart stronger.
Unless we can get the pulmonary pressure down and my dry weight closer to 90 kgs, I won't be considered for a transplant. Its just not possible to match a healthy heart of similar weight and size when my pressure is running so high. So I may be starting start dialysis 4x a week in the hopes of getting more fluid off. The side effects are unbearable cramping (the kind where my hands contort in cramps and my legs cramp all night long) and exhaustion. I've had another catheter put in my abdomen in preparation for home peritoneal dialysis (PD) as opposed to the clinic hemodialysis which is what I am doing now. Once I am on PD I will do it 7 days a week at home. It will be less stressful on me physically and I can take the set up with me if we travel. Both my wife and I have to go through intensive training before that can start. We expect the training to be completed and hopefully I can begin the home dialysis in March.
Saturday, August 27, 2011
Health Update
I have been reluctant to post any news regarding my health; I did not want to appear to be trying to elicit sympathy or just plain whining. Christina, who is a friend and neighbor as well another cancer survivor, suggested that I should update this blog with my recent news.
A quick recap: I was treated for Stage IIIB Hodgkins Lymphoma with chemotherapy and radiation during 1976 and 1978. I have been cancer free since. Late effects, however, began occurring in the late 1990’s, including congestive heart failure (1998) and atrial fibrillation (2003).
The fibrillation returned in 2010. A pacemaker was installed in November 2010, but the fibrillation continued and the CHF got worse. In April 2011, various tests confirmed that I had coronary artery disease. On May 17 triple-bypass surgery was performed. That was successful, but my kidneys failed shortly thereafter and I have been on dialysis since June. Also, the surgery indicated that I had severe radiation fibrosis further impacting my heart. Additional tests indicated that the CHF is very severe and that the best course for me will be a dual heart and kidney transplant within the next two years. Without the heart transplant, my cardiologist gives me a 50/50 chance of surviving for two years.
So, if any of you who read this have any experience with heart and kidney transplants, I’d welcome your comments!
Sunday, May 15, 2011
Thursday, February 3, 2011
A RI Yankee's Tea Party
Obviously, I am an unabashedly liberal conservative in the strict-constructionist camp of non-revisionist history, geography and baseball hagiography. Certain things mystify me; others just bewilder me. Really, I just do not understand. As Elvis Costello sings, “I used to be disgusted, now I’m just amused.”
Well-off, educated, employed, older mainly European-Americans (so-called white folks) are the vast majority of Tea Party members and call themselves “Patriots.” The “system” has worked for them: they are well off, educated and employed or retired! They want to take “their” country back… from themselves? If the Tea Partiers that I see on TV or those who watch Fox (not really the) News, or Glenn Beck or Sean Hannity, were aboriginal native Amerindians I would say “Go For It!” No, the Tea Party members are the actual Caucasian winners; so they want what? A bigger, better victory? A Marcus Garvey solution? A return to ante-bellum times?
The governors of Virginia (Bob McDonald) and Mississippi (Haley Barbour) are celebrating the memories of Confederate veterans. Virginia and Mississippi are part of the southern USA, an area that currently claims to be more American and patriotic than the east coast, west coast or the (Yankee) north. The Civil War (or The War Between the States, in the southern idiom) was not about slavery or rebellion against the greater United States, it was about “states rights.” In a narrow way I agree: a state’s right to allow slavery within its borders. Slavery is/was wrong, therefore the Confederacy was wrong to insist upon slavery as a state’s right and was wrong to rebel against the federal government. The Civil War was a treasonous, terrorist act against the United States. Treasonous, terrorist acts against the United States are sometimes punished with execution (see Eddie Slovik, Sacco & Vanzetti, and Timothy McVeigh, amongst others). The treasonous Confederate rebels were compassionately pardoned (for the most part) and went on to found such stalwart American patriotic institutions as the Ku Klux Klan, the spiritual antecedent to many of today’s militias. They believe that the second amendment is gospel but want to repeal the fourteenth amendment. They believe that the founding fathers were perfect, a group that thought that slaves were worth only 3/5 of a human being for representation purposes, but not human for moral purposes. WTF, indeed.
Many of these American Patriots that are members of the Tea Party believe that Barack Obama is a Muslim. It should make no difference what folly a person believes in, so long as that person is performing their duties. Many of the same folks believe that Obama was born in Kenya and is, thus, not an American citizen. Many of the same folks equate Obama with Adolph Hitler, while calling Obama a Marxist. (OK, they are not that well educated, confusing a Marxist and/or a Nazi with a centrist Democrat. If you listen to Hannity and Beck religiously enough, anything is possible.) This as they shout out to Obama to “keep the government hands off my Medicare!” Many of these folks are screaming about their taxes, without realizing that they are paying less in taxes than they did under their fiscal god Ronald Reagan and his illegitimate acolyte George W. Bush. Hey, Ayn Rand used Medicare and collected social security.
The common thread here, to me, seems to be racism; similar to the racism that dominated baseball and caused the game to be restricted between the careers of Moses Fleetwood Walker and Jackie Robinson. How could a black man play baseball with a white man? How could a black person be president over white people?
And now, Sarah Palin has a WTF moment (she said it, not me) and gets it all wrong about sputnik; Michelle Bachman just gets it all wrong and misinterprets her own chart. I rather like this Tea Party stuff. Reminds me of the Know Nothing Party of the mid-1800’s.
Damn, that rant felt good!
Friday, January 28, 2011
Moose Juice
On our epic pilgrimage to Evansville IN in 1971 for the NCAA Division II hoop Elite 8 tournament, after learning what it meant to have the bridge freeze before the highway (see my post of April 2009), we did get to see some great basketball. In the first round, Assumption College and Southwest Louisiana State, despite both being ranked either No.1 or No.2 depending upon which national poll you read, played against each other. Of course, the tournament was held on the home court of the University of Evansville (they competed in Division II in those days) and as hosts of the tourney, Evansville, apparently, had some say in the pairings. In the second round, they got to play the winner of the AC / SWL bloodbath.
The AC / SWL game was a superb run and gun battle, with the Ragin’ Cajuns winning the slugfest 110-99 (if my memory serves me well). The next night, the Evansville Aces easily defeated the weary and spent Cajuns. Luck of the draw or canny scheduling?
But this is about the party after the Hounds’ defeat by the Cajuns!
The party was held in the hotel where some of the teams and many of the fans were staying (that hotel was converted later to some sort of residency – Ken Szymanski would know about this from his days as a city planner in Evansville). People and players were everywhere; bathtubs were full of beer and wine coolers. Cheerleaders were pouring beer down players’ throats (other teams’ players, of course). Someone had brought a mechanical hockey game and guys were sitting on the floor playing the game.
As I wandered about the hotel, it became apparent that I had run out of my beverage of choice that evening (scotch). I met some of the good folks from Old Dominion University (VA) who offered me some of the “punch” that they were drinking. I had a taste. Pretty sweet-tasting stuff without much kick, I thought to myself. “Have some more of the Moose Juice, y’all,” they said, “but be careful – it sneaks up on you!” “What’s in it,” I asked. “Fruit cocktail and grain alcohol,” they replied. Within the hour I was virtually blind.
At some point approaching midnight, it was decided that we had to head back to our motel. Jim could drive, but he did not know the way. Lou could not drive and also did not know the way, but he could (barely) read the signs. I could not drive and could not see, but I knew the way. So, Lou navigated, read the signs and I barked orders. Jim followed my directions and drove while John moaned “we’re all gonna die!”
We made it back to the motel. We did not die. But later that early morning as we attempted to sober up, we listened to Radio Havana (heard very clearly on the AM dial) break news of a wholesale retreat of US and South Vietnamese forces in the face of a furious Viet Cong and North Vietnamese attack. CBS, NBC, ABC and the Pentagon all spoke of a strategic withdrawal. History later informed us that Radio Havana was correct.
Yeah, we drank too much and maybe Jim was a little too “tired” to be driving, but it was 1971 and, damn it, we were in Evansville! Ken, did they really convert that hotel to a residence after that party?
Thursday, January 27, 2011
Remembering Steve Morris
It was Fall Semester 1970 at Assumption College in Worcester, Massachusetts. I had been thrown out of a Philosophy class because I was neither a major, minor, senior or junior. As I was departing that classroom, I encountered Professor Jim Barbato, from whom I had taken an environmental science class the previous semester. He had seats remaining in his current Oceanography class, so I quickly signed up and joined the first meeting of a class that would change my life in so many ways.
While I was familiar with Prof. Barbato, I do not remember knowing anyone else in the class that first day. Somehow I ended up sitting and becoming friends with Lou Boyatzi and Steve Morris. That led to friendships with several other folks, including Brendan Bierch, Ed (Chick) Chalmers, and a host of others.
A little over 40 years later, I am saddened to learn of Steve’s recent death in an email message from Brendan. I had not seen Steve in several years, but had remained somewhat connected via email and the Assumption College website. Most recently, I had emailed him complaining that the Phillies had stolen my birthday present by signing Cliff Lee. His reply: “Heh, heh!” I could hear his voice.
So many “Steve” stories. Most people addressed him as “Merc,” and the Worcester Telegram & Gazette, in its recent article on Steve’s death, remarked that the late Assumption College basketball coach Joe O’Brien nicknamed Steve “Merc” during a gym class. True, but the whole story of the naming reveals much about Steve and his character. I remember that day well.
It was a Monday morning, a Monday that followed a Sunday wherein the flamboyant, speedy and talented flanker/running back/kick returner Mercury Morris of the Miami Dolphins had ignominiously fumbled at least two kickoff returns. In the open gym class, we were engaged in a touch football game in which Coach O’Brien served as the designated quarterback for both squads. Somehow, Steve managed to sneak into the open several times and Coach hit him square on the numbers on each occasion. Somehow, Steve managed to drop each of Coach’s perfect tosses. “Just like Mercury Morris,” chortled Coach O’Brien. Of course, Steve was slightly less fleet of foot than the professional Mercury Morris, but the name stuck. Steve became Merc. Sure, Coach O’Brien had teased Steve by calling him Merc, but Steve saw all of the irony and humor and adopted his new name. “Merc72” was on his auto registration plates and "Merc" in his email address.
In the process of getting to know each other, Steve quickly found out that I was not only a fan of the hated New York Yankees, but that I rooted for the Chicago Black Hawks as well. Bobby Hull was my favorite player. One morning, upon my arrival at Zip’s (then the day-hop or commuter’s hangout) Steve solemnly informed me that Hull had been traded to the Bruins for chump change and a case of stale Narragansett beer. “I just heard it on WBZ,” he informed me. All day long I moped around campus, finding it hard to believe. As I was cutting through the gym on my way to a class, Coach O’Brien paused to speak with me, saying “Sorry to hear about Hull going to the Bruins, Mike. You must be heartbroken.” Later that day, Assumption’s All-American basketball payer Jake Jones stopped me to say the same thing. Of course, it was all a great practical joke set up magnificently by Steve. Steve’s comment the following day when I sheepishly acknowledged his yanking of my chain and pulling of both my legs: “Heh, heh!”
Steve got me a small position as a statistician with the athletic department. Mostly, I kept track of steals, rebounds and the like during JV and varsity basketball teams. I got to travel with the team on many trips, including Washington DC to take on Catholic University and Georgetown University and most games throughout New England and New York. It was great fun and I owe it all to Steve. One of the most exciting tasks I performed was to help compile and then deliver the halftime and final stats to the radio and television broadcasters. During the heyday of Assumption basketball in the 70’s, that meant hobnobbing with Tom Heinsohn and Bob Cousy.
When I was in graduate school at Western Kentucky University, I made it a point to meet Steve and his good pal Fr. Ed Chalmers at the old NCAA Division II tournament in Evansville, IN. Steve got me press credentials for the games.
So many memories of Steve: sports trivia contests, meatball grinders at his uncle’s pizza shop in Shrewsbury, word games, bad jokes, cold-cut grinders and root beer at Zip’s, driving Bentley College’s basketball coach to Robert’s Arena in Evansville, insulting Bobby Goldsboro in Evansville at the Executive Inn, Queen burgers at some god-forsaken diner in Reynoldsburg, OH (“Ya gotta go to the restroom and see for yourself…”).
Yesterday, Wednesday January 26, I spoke about Steve with Fr. Ed – Ed was in Worcester at St. Stephen’s parish and I was in Larkspur CA visiting my father-in-law. Our conversation started sadly, but ended in laughter as we reminded each other of the joy that we shared over these 40 years (more for Ed) of friendship with Mercury Morris. Ed and I made plans to visit the next time I am in Worcester. I am sure that we will talk about Merc.
See Ya 2010!
Monday, April 19, 2010
Joe wants to "Keep Your Team Out of My Book"
Saturday, April 3, 2010
Doctor Who?
I read this morning in that drearily middle-of-the-road rag known as the New York Times that some doctor in Florida placed signage on his door demanding that Obama supporters go elsewhere for their health care. Not so unusual here in Corvallis, OR where a much respected physician has refused to provide health care to me because I am too ill and take too many medications (I'll give you his name if you ask offline). Health care in this country must be really reformed so that people in Florida and Oregon (and the other 48 states, also - assuming that Rick Perry hasn't led Texas to secede this weekend) can be treated by any and all physicians. No physician should be allowed to practice if she/he chooses to refuse care based upon politics and disease!
Thursday, February 25, 2010
My Mosi Tatupu Story
In the early 1980’s I worked as a clerk in a stereo and photo store (Audio Concepts) in the Attleboro Falls section of North Attleboro, Massachusetts. Due to the store’s proximity to Foxborough, the site of the New England Patriots home stadium (then called Sullivan Stadium, if I remember correctly), a number of the Patriots players lived in the area and shopped at the store for their toys. Amongst the players that I remember were Steve Grogan, Roland James, Larry McGrew, Lin Dawson and Mosi Tatupu. McGrew was a very nice man who once greeted me by name in a record shop near Boston. Dawson once approached the store with a pair of Bozak speakers, one under each arm. If you know Bozak (not Bose!) you know how strong Dawson was. Roland James picked up his repaired cassette deck just a couple of days after he had fumbled two punts and/or kickoffs in a game against the Miami Dolphins. One of the other clerks cautioned him not to fumble the deck. But my favorite Patriot was Mosi Tatupu.
Every time that he came into the store (or so it seemed) he was with his wife Linnea. One year they brought an early 60’s GM classic California car to the store to have a stereo installed. Another time, Mosi lusted after a new Sony Walkman (they were very much the hot item that year) and Linnea told him that he could get one if he scored a touchdown that Sunday. He did and he got his Walkman the next week. As was always the case, Linnea paid with a check. They always seemed so friendly, so serene and so approachable.
I do not watch much pro football these days and I cannot say that I know the players as well as I did when Mosi played special teams with aplomb and was a very reliable third-down addition to the backfield. I did get excited a couple of years ago when Mosi’s son Lofa joined the Seattle Seahawks. Whenever they play on TV, I try to watch a defensive series or two to see Lofa play linebacker. Next season, I’ll try to watch a little more.
Sunday, February 7, 2010
A Letter From a Reds Fan...
Some historical cemeteries in Texas were being recognized for their esteemed contents and Bubbie’s father’s cousin in Israel had heard about it. A relative of Pop’s (Bubbie’s dad) was, apparently, buried in a cemetery in Rockdale and the Israeli cousin had contacted Pop and wondered if he (Pop) would attend the dedication ceremonies. No, he would not, but Pop contacted Bubbie who asked me to find out what the real story was.
I contacted the Rockdale newspaper’s office who put me in touch with an editor (Mike Brown) at the paper (The Rockdale Reporter) . Mike had recently written an article about the upcoming dedication and informed me that the cemetery was being dedicated as a repository of the remains of Confederate Civil War veterans. Coincidentally, Pop’s ancestor was also buried there, in the segregated “Jewish” section of the cemetery. Pop’s ancestor, a fellow with the last name of “Crown” had died in a fire at a local hotel, leading to his permanent residency in Rockdale.
Crown is actually the Anglicized version of the name “Crohn.” Another relative if this Mr. Crown is Dr. Burrill Crohn who described the disease named after him in 1932. Dr. Crohn was Pop’s uncle. All of this, however, is anther story for another time. This is about Mike Brown.
I e-mailed Mike after the Yankees clinched number 27 in November 2009. Because I know that Mike is a devout Cincinnati Reds fan, I teased him about being a Yankees hater. Here is his reply.
Gee Michael,
I don't know why anyone would possibly classify me as a Yankee hater.
Doesn't everybody use the term "bloated plutocrats?"
As I've previously told you I was rooting for the Yankees against the Phillies for obscure and cabalistic reasons of my own involving the 1975-76 Reds.
Since this is me, my reactions to the WSJ (Wall Street Journal) article are unique and several degrees off center.
I love the way the WSJ refers to "Mr. Sabathia (they spelled his last name
Incorrectly…), Mr. Rodriguez and Mr. Teixeira. " At this newspaper we only "Mr." somebody in obituaries. Guess you have to die to get any respect.
What a law firm that would make, Sabathia, Rodriguez and Teixeira. How many
people do you know who would have to take a pay cut to become an attorney?
Sorry, I guess that re-tort was out of line.
And, of course, that made me think of Groucho's law firm in "Animal Crackers."
Hungadunga, Hungadunga, Hungadunga and McCormick.
Then I got copied on a reply to you from Mr. Menard who referred to "doyens
of the Red Sox nation." Wow, have they ever fallen. I would have thought
it would have been hundreds instead of just doyens.
Which made me think about either Roger Angell or Roger Kahn who wrote about
trying to get the word "cerebration" into print three times and each time an
editor changed it to "celebration."
Probably a Yankee fan.
Mike
The End of Pain?

The attached ad for a “Copper Magnetic Therapy Jesus Bracelet” was in this morning’s Red Plum coupon supplement to the Corvallis Gazette-Times (04/06/10). It just may be in your Sunday newspaper, also! Not only has Dream Products harnessed the power of copper and magnets for their reputed therapeutic powers, they apparently have contracted the services of Jesus Christ himself. Having much chronic pain myself, as well as being a noted pain in the ass at times, I am intrigued. The cynic in me, however, wonders if this item would be better as a dog-style collar. Maybe the fine folks at www.Mixedspecies.com will create something!
Monday, November 30, 2009
Travels with Bubbie: 11/27/2009 - 11/30/2009
The weather was decent and the scenery from the hotel room at the Waterfront Marriott was excellent, overlooking Elliot Bay. Gannet loved watching the ferries, container ships, tugs and gulls do their thing; Bubbie and I enjoyed watching Gannet do his thing!